Conference: European Health Data Space: Initiatives in Navarre

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11/12/2023

The Institute of Smart Cities (ISC) of the UPNA, together with EDONA and Navarra Health Cluster organised this conference which was held on 11 December 2023 from 09:30 to 14:00 in the conference room of the Jerónimo de Ayanz building, UPNA.

Following the scheduled programme, the conference began with an introduction to the European Health Data Space (EHDS), given by Laura Corcuera, Manager of the Navarra Health Cluster (NHC), who also explained the objectives of this cluster. Subsequently, Javier Turumbay, Deputy Director of Health Systems and Technologies of the SNS-Osasunbidea, explained the current situation and the digital health strategy of Navarra,as well as the plans for digital transformation and sustainability of the SNS-Osasunbidea within the EEDS, including some keys to success in this process such as the presence of strategies, prioritisation and change management in the system. His colleague, Javier Gorricho, then completed the first part of the day with an introduction to the secondary use of data within the SSDS, explaining the NHS-Osasunbidea initiative called BARDENA (Base de Análisis Resultados DE Navarra) which since 2014 has been developing a system that integrates and unifies health data in Navarra, providing high quality, performance and speed in the use of data.

After a short break, the second part of the day continued with an explanation of some of the past, present and future experiences developed in both the public and private regional environment.

From the public sector, the NaIA suite of the SNS-Osasunbidea was described by Imanol Pinto, which deals with medical image screening in Diabetic Retinopathy and medical decision support for the treatment of Age-Related Macular Degeneration through the use of Artificial Intelligence. Likewise, experiences in the exploitation of health management data developed at the Public University of Navarra by the QUPHS Group led by Professor Fermín Mallor have been described with the aim mproving the flow of patients in the Emergency Department (APAMET Programme) and improvements in the management of ICU beds through the use of Digital Twins, as an example of how the secondary use of data significantly improves management efficiency. Igor Ruiz de los Mozos also explained the role of NASERTIC at regional, national and international level in genetic sequencing, as well as several personalised medicine projects developed (IMPaCT-Genomica and IMPaCT-Data) and an outline of the potential of genomics in clinical practice.

From the private sector, two companies from the ICT sector that are developing applications for the exploitation of health data participated in the event. In case of, NNBiOskitz Ruiz explained several of the projects they have already developed (TRE Project and MINERVA II) as well as their vision of he bottlenecks to be solved in this digital transition and the development of AI for clinical support. Finally, Borja Balparda from Data Value Management, presented the development and results of the MARGA project on the impact of genomic mutations on the onset of cancer in heavy smokers. He also presented the study carried out on apnoea in collaboration with the company BTI from Alava and a tool for predicting the need for beds in hospitals in the Osakidetza network.

The day ended with a round table, by way of conclusions, with the participation of Laura Corcurera (NHC), Javier Turumbay (Government of Navarra) and Mikel Galar (UPNA/Neuraptic AI), moderated by Professor José Javier Astrain of the UPNA The debate focused on the interoperability and governance model of health data, change management, the need for a unified language and trust vs. distrust in the exploitation of such data.

The conference can be considered a resounding success both for the quality of the speakers and the topics of great interest presented, as well as for the number of attendees from the private sector, ICT companies, and the public sector, UPNA, PRIs and the Government of Navarra.

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